Please send link suggestions (your webpage or others)
to me. I can only grow the webpage
with your help
Bills; Reports; Links; Article
Bills
- http://info.sen.ca.gov/pub/bill/asm/ab_2301-2350/ab_2328_bill_20020221_introduced.pdf
AB 2328, as introduced, Wayne. Medical experiments.
Existing law, the Protection of Human Subjects in Medical Experimentation
Act, prohibits any person from being subjected to any medical experiment unless
the informed consent of the person is obtained. This bill would authorize
certain persons to give surrogate informed consent for a person to be subjected
to a medical experiment when conducted within an institution that holds an
assurance with the United States Department of Health and Human Services in
accordance with specified regulations, if that person is unable to give that
consent.
- House
of Senate Bill S193 dealing with Informed Consent (USA)
Reports
- The Belmont Report--Ethical
Principles and Guidelines for the Protection of Human Subjects of Research
- Report to the Advisory
Committee to the Director, NIH from the Office for Protection from Research
Risks Review Panel, June 3, 1999
- Research Involving Persons
With Mental Disorders part 1 NBAC USA
- http://bioethics.gov/capacity/volumeii.pdf
1999 NBAC Report regarding research involving persons with mental disordersthat
may effect decision making capacity part 2 NBAC USA
- http://www.courts.state.md.us/opinions/coa/2001/128a00.pdf
Maryland Court of Appeals decision
(Grimes v. Kennedy Krieger Institute / Johns Hopkins University, August 16,
2001).he Maryland Court ruled that the exposure of children to risk in non-therapeutic
research--even with parental consent--is unethical and prohibited.
- FDA Ethics
Working Group Consensus Statement on the Pediatric Advisory Subcommittee's
November 15, 1999 Meeting
- http://www.fda.gov/OHRMS/DOCKETS/98fr/042401a.htm
Additional Safeguards for Children in Clinical Investigations of FDA-Regulated
Products
- http://www.bmj.de/publik/e_proto1.pdfDraft
Explanatory report to the draft additional Protocol to the Convention on Human
Rights and Biomedicine, on Biomedical Research (Strasbourg, 31. August 2001)
- http://www.bmj.de/publik/e_proto2.pdf
Draft additional Protocol to the Convention on Human Rights and Biomedicine,
on Biomedical Research (Strasbourg, 18. July 2001)
- SSHRC
Policies: Ethical Conduct for Research Involving Humans (Canada)
- Advisory Committee
on Human Radiation Experiments NEW
- Alder Hey (Royal
Liverpool Children^Òs Inquiry) NEW
- Bristol
Royal Infirmary Inquiry NEW
- Medical Errors: Practicing
Physician and Public Views NEW
Links
- AHRP Home Page The Alliance
for Human Research Protection (AHRP) is a national network of lay people and
professionals dedicated to advancing responsible and ethical medical research
practices, to ensure that the human rights, dignity and welfare of human subjects
are protected, and to minimize the risks associated with such endeavors.
- A Journal for Human Research Subjects
- A History
of Secret Human Experimentation NEW
- Consumers for Ethics
in Research UK is concerned to publicize their views, and to promote informed
debate about research NEW
- Medical
Experiments NEW Between 1939 and 1945, at least seventy
medical research projects involving cruel and often lethal experimentation
on human subjects were conducted in Nazi concentration camps. ...
- Public Citizen NEW
- World Network of Users and Survivors of
Psychiatry
- Informed
Consent, Cultural Values, and Regulatory Overview: 2001 conference Video
available on webpage NEW
- doctorsintegrity NEW
- Mental Magazine uk NEW
- The President's
Council on Bioethics USA
- Protection of Conscience Project
- Integrity in Science: A CSPI
Project
- Ethics Presentation
Outline
- General
Resources on Experiments on Humans
- Decisionally Impaired
Persons in Research: Refining the Proposed Refinements
- Guidance for IRBs
- IRB Manual
Maryland
- lifeissues
| Accountability in Research Using Persons With Mental Illness
- frontline:
medicating kids (preview)
- http://home.att.net/~McFlurryLove/dw.htm
- Support Coalition International's
MindFreedom.org HOME PAGE
- Mental
health care: Too many teens, too few beds
- Bioethics
panel mulls human research - 10/25/2000 - ENN.com
- Web
site launched to train those who do human research
- \Friends Research Institute -
A Non-Profit Organization Providing Administrative Services For Federal
- Welcome to Stopshrinks Org
- Protection of Conscience Project
- International Network for
Mental Health Promotion
- http://www.mindfreedom.org/dendrites/dendrites_index.html
- http://home.nas.net/~raven1/rb-bill.htmCambridge,
MA writer and researcher, Roy Bercaw, wrote this bill, which was filed with
the Massachusetts state
legislature. It addresses the need for protection from criminal medical experimentation
- Diagnosis
of Attention-Deficit/Hyperactivity Disorder and Use of Psychotropic Medication
in Very Young Children
- People Against Coercive Treatment
- Patients Council
- Maryland Attorney
General - Opinions & Advice
- ACHES - MCAdvocacy Committee for
Human Experimentation Survivors
- Common
Rule (USA) Analysis
- Protection of
Human Subject; Informed Consent
- Bioethics
Interest Group (Report to NIH about research on Non consent able people)
- PCRM--Issues--Growth
Hormone Experiments
- The Problem
of Proxies with Interests of Their Own
- Limitations of the Best Interests
and Substituted Judgement standards (DIDMSNJ)
- Patient's Rights
& Self-Determination
- SSHRC
Policies: Ethical Conduct for Research Involving Humans (Canada)
- International Network
For the Definition of Death Network to change brain death definition
- The National Association of State Mental
Health Program Directors
- NOVA Online | Coma
- http://www.well.com/user/dpd/heffter.html
Interesting
- Graeme Bacque
's Home Page Home of a Psychiatric survivor
Article
